The Adolescent and Young Adult Gender Dysphoria Outcomes Study
The Adolescent and Young Adult Gender Dysphoria Outcomes Study (AYAGDOS) is open for recruitment.The purpose of this research is to learn about gender dysphoria in youth (13-21 years of age) with a focus on psychological well-being, family factors, sexual orientation, health care, and the course of gender dysphoria over time. We hope to enroll pairs of family members–one gender dysphoric youth and one of their parents/guardians–to complete a series of separate online surveys over a period of five years. However,participation of both family members is not required. Gender dysphoric youth can participate without involving their parents, and parents of gender dysphoric youth can participate without involving their gender dysphoric child. An eligibility screening interview will be conducted by videoconference call for the first potential participant from the same family to contact the research team. Research participation requires completing an Internet survey, is voluntary, and is not compensated.
Potentially eligible individuals are either: 1) a person who is 13-21 years of age and has gender dysphoria or 2) a person who is the parent of a 13-21 year old gender dysphoric youth. All participants must be English-speaking and live in one of the countries listed on the study website: WWW.AYAGDOS.ORG.. These include the U.S., the U.K., Canada, Australia, and members of the European Union.
The study Investigators are J. Michael Bailey (Principal Investigator); Lisa Littman (Principal Investigator); and Kenneth J. Zucker (Co-Investigator). The Northwestern University IRB Study Number is STU00215665 and the BRANY IRB Study Number is 22-076-1188. For more information and to schedule a screening interview, please visit the study website WWW.AYAGDOS.ORG.. Contact the research team at AYAGDOS@gmail.com
